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CA Rare Disease Access Coalition

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  • August 2026

  • Thu 20
    CRDAC Aug Meeting

    August 20th CA Rare Disease Access Coalition Hybrid Meeting

    Featured August 20 @ 1:00 pm - 4:00 pm
    UC Student & Policy Center 1115 11th Street, Sacramento, United States   +1 more

    REGISTRATION IS NOW OPEN! Our next hybrid in person/virtual meeting of the California Rare Disease Access Coalition will be on Thursday, August 20th from 1:00 – 4:00 PM at the UC Student & Policy Center (1115-11th Street, Sacramento).  Registration and lunch are from 12:00 – 1:00 PM. We hope you can join us! To REGISTER, fill out the form below-

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  • About Us
    • How We Advocate
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    • Meet the Board
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Meredith Wolfe

Meredith Wolfe works as the Administrator for the California Children’s Services (CCS) program for Humboldt County, where her focus is on access to high quality care for children with chronic and complex medical conditions, including bleeding disorders. Outside of work, she is the parent of a senior in high school with severe Hemophilia A, and sister to a brother with Hemophilia. Her lifelong experience with Hemophilia led her to become involved as an advocacy ambassador for the Hemophilia Council of California. She has also presented about the CCS program as part of the HCC webinar series. 
 
Meredith lives in Eureka, on the far north coast of California, distant from bleeding disorders chapters, events, and services. Because of the distance from these resources, she is excited to be involved in the start-up of the new Redwood Bleeding Disorders Community, a non-profit serving people with bleeding disorders and their families, and bringing them together to create a community in Humboldt and Del Norte counties. Meredith has a Masters in Healthcare Administration from George Washington University.