You may have heard about cuts at the US Health and Human Services agency, including the Centers for Disease Control (CDC). And you may have seen emails and social media about how these cuts impact the bleeding disorders community. In this webinar, we explain the relationship between the CDC and our hemophilia treatment centers, as well as provide more information about how you can advocate for the restoration of the Division of Blood Disorders.
Visit our Advocacy Page for resources on how to advocate and sheets summarizing our major webinar discussion topics.
Chapters:
0:00 Intro
1:00 What is HCC?
2:43 What is a hemophilia treatment center?
6:04 Who is served by the US HTC Network?
6:41 Benefits of having a HTC Network
7:45 HTC Funding
9:27 HRSA Grant and Its Role in Funding HTCs
11:56 What is the CDC?
13:26 The CDC Division of Blood Disorders
14:29 The CDC’s Laboratory Services for blood disorders
17:25 Blood Safety
23:04 Medicaid/Medi-Cal Funding Cuts
25:05 ACA Enhanced Premium Tax Credits Expiration
26:20 What we can do – Advocacy opportunities
27:40 Our “Ask”
