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UID:10000056-1787230800-1787241600@www.bdcouncilca.org
SUMMARY:August 20th CA Rare Disease Access Coalition Hybrid Meeting
DESCRIPTION:REGISTRATION IS NOW OPEN!\nOur next hybrid in person/virtual meeting of the California Rare Disease Access Coalition will be on Thursday\, August 20th from 1:00 – 4:00 PM at the UC Student & Policy Center (1115-11th Street\, Sacramento).  Registration and lunch are from 12:00 – 1:00 PM. \nWe hope you can join us! \nTo REGISTER\, fill out the form below-
URL:https://www.bdcouncilca.org/event/august-20th-ca-rare-disease-access-coalition-hybrid-meeting/
LOCATION:UC Student & Policy Center\, 1115 11th Street\, Sacramento\, United States
CATEGORIES:CA Rare Disease Access Coalition
ATTACH;FMTTYPE=image/png:https://www.bdcouncilca.org/wp-content/uploads/2026/06/2026-08-20-CRDAC-Blog-Header.png
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DTSTART;TZID=America/Los_Angeles:20260323T083000
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DTSTAMP:20260126T212104Z
CREATED:20240926T215556Z
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UID:10000020-1774254600-1774283400@www.bdcouncilca.org
SUMMARY:Día Legislativo (Visita a la legislatura) 2026
DESCRIPTION:Este evento importante de defensa brinda una oportunidad para que las personas\, las familias y los defensores de la comunidad de desórdenes sanguíneos se reúnan y compartan una voz unida. \n\nEspecialmente para las personas de habla hispana: Tendremos grupos en su idioma que se reunirán con legisladores y su personal que son bilingües en español. Durante estas reuniones\, usted puede brindarles información sobre los desórdenes sanguíneos y los problemas que enfrenta la comunidad.\n 
URL:https://www.bdcouncilca.org/event/dia-legislativo-2025/
LOCATION:1021 O Street\, Sacramento CA\, 1021 O Street\, Sacramento\, CA\, United States
CATEGORIES:Día Legislativo
ATTACH;FMTTYPE=image/png:https://www.bdcouncilca.org/wp-content/uploads/2024/09/SPANISH-2026-Leg-Day-Flyer-final-graphic-for-website.png
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DTSTART;TZID=America/Los_Angeles:20260226T121500
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DTSTAMP:20260107T020305Z
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UID:10000040-1772108100-1772121600@www.bdcouncilca.org
SUMMARY:California Rare Disease Access Coalition Meeting | February 26\, 2026
DESCRIPTION:You must purchase a ticket or become a Member to attend this event. See Ticket Options Here. \nCA Rare Disease Access Coalition Meeting\nDATE: Thursday\, February 26\nTIME: Registration & Lunch 12:15 – 1:00 PM\n           Coalition Meeting      1:00 – 4:00 PM\nLOCATION: HYBRID –\nIN PERSON: UC Student & Policy Center\, 2nd floor (1115 11th Street\, Sacramento)\nFor a map\, visit https://maps.app.goo.gl/7xv5p4JiKQSAtoGc8\nOR\nVIRTUAL: Via Zoom (link will be sent to registered attendees via email)\nREGISTER HERE!\n\nThe event space is on the 2nd floor.  Enter through the front doors\, turn left and take the elevator or stairs to the second floor. Look for signage.\nPARKING\nThere are several parking lots and garages near the UC Student & Policy Center in Downtown Sacramento.  Below is an example.   \n\nCapitol Garage 1129 10th St – credit/debit card only\n\nYou can also visit https://my.sacpark.org/  to find discounted parking garages and lots nearby. \nHOTELS \nThese hotels are for your reference if you will be staying overnight in Sacramento.  Please call hotels individually for rates.   \n\nResidence Inn Marriott Downtown Capitol Park\n1121 15th St.\n916.443.0500\n9 min walk\nSheraton Grand\n1230 “J” St.\n916.447.1700\n5 min walk\nHyatt Regency \n1209 L Street\n916.443.1234\n2 min walk\nInn Off Capitol Park \n1530 N Street\n916.447.8100\n12 min walk
URL:https://www.bdcouncilca.org/event/california-rare-disease-access-coalition-meeting-february-26-2026/
LOCATION:UC Student & Policy Center\, 1115 11th Street\, Sacramento\, United States
CATEGORIES:CA Rare Disease Access Coalition
ATTACH;FMTTYPE=image/png:https://www.bdcouncilca.org/wp-content/uploads/2026/01/2026-02-26-Coalition-Meeting-Email-header.png
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