Advocacy
Overview
The BDCC actively seeks the support of the California legislature for measures that will improve the quality of life of members of the bleeding disorders community.
Our efforts focus on supporting the current programs that exist, such as the Genetically Handicapped Persons Program (GHPP) and California Children’s Services (CCS), as well as evaluating changes to the current health system that may affect access and quality of treatment. BDCC supports and encourages all patients with bleeding disorders to seek the expert care of trained professionals at the Hemophilia Treatment Centers throughout the state. BDCC also supports choice of providers and treatments, and educates the bleeding disorders community on the range of options for treatment.
The Bleeding Disorders Council of California is actively educating our Legislators and the public on the importance of bleeding disorders treatment both for the bleeding disorders and greater rare disease communities.
Our Advocates
- Participate in local and state events
- Learn about and address key issues
- Participate in setting advocacy priorities
- Develop relationships with key decision-makers and leaders
- Connect with community members, caregivers, and stakeholders
- Share their unique story to help raise awareness
See our
Advocacy Opportunities
to learn how you can help make a difference.
Advocacy Toolkit
For current or aspiring advocates, we offer a collection of resources to utilize in preparation for our advocacy opportunities.
These resources are free to use, and offer a wealth of information to assist and support your advocacy efforts.
