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CRDAC’s 1st Annual Virtual Advocacy Day

June 11 @ 9:00 am - 3:00 pm
CRDAC Virtual Advocacy Day

Join us for the first annual CA Rare Disease Access Coalition Virtual Advocacy Day on June 11th, 9 AM – 3 PM! This important advocacy event provides a chance for individuals, families and advocates of the rare disease community to come together and share a united voice. On June 11th, small groups of advocates will meet virtually and each group will have several online meetings with key Senators and Assembly members, or their staff.  During the meetings, you will provide them information about rare disease.  Participants will also advocate for funding of Medi-Cal, California Children’s Services (CCS) and the Genetically Handicapped Persons Program (GHPP) as well as encourage legislators’ support for AB 1887 and SB 1199.

REGISTER HERE

WHEN: 
  • Advocacy Day Training Webinar & Team Practice Session – June 11th at 9 AM (1 hr duration)
  • Advocacy Day Online Meetings with State Legislators or their Staff- June 11th, between 10 AM and 3 PM (Exact times pending legislators’ schedule availability)

WHERE: Online – Zoom webinars

For more information, please contact CRDAC.

NOTE: IF MULTIPLE PEOPLE ARE ATTENDING, FILL THIS FORM OUT FOR EACH PERSON!

REGISTER NOW!

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Can this event be attended virtually?
yes